Building a chain of trust: using policy and practice to enhance trustworthy clinical data discovery and sharing

Authors:
Nick Anderson;Kelly Edwards
Affiliations:
University of Washington, Seattle, WA;University of Washington, Seattle, WA
Venue:
Proceedings of the 2010 Workshop on Governance of Technology, Information and Policies
Year:
2010

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Abstract

Advances and significant national infrastructure investment into clinical information systems are spurring a demand for secondary use and sharing of clinical and genetic data for translational research. In this paper, we describe the need for technically leveraged policy models and governance strategies to support data sharing between a range of disparate stakeholders where trust is not easily established or maintained.