Neuroimage data sets: rethinking privacy policies

Authors:
Nakeisha Schimke;John Hale
Affiliations:
Institute of Bioinformatics and Computational Biology, University of Tulsa, Tulsa, Oklahoma;Institute of Bioinformatics and Computational Biology, University of Tulsa, Tulsa, Oklahoma
Venue:
HealthSec'12 Proceedings of the 3rd USENIX conference on Health Security and Privacy
Year:
2012

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Abstract

Data sharing has been promoted as a significant step in neuroimaging-based research for over a decade, yet the vision for widespread sharing has not been realized. Despite the availability of tools for deidentifying data and a few standout examples of data sharing, privacy concerns over the treatment of neuroimages as full face images have not been resolved. Continuing to share data, in large undertakings or ad hoc collaborations, without resolving the issue serves neither the subjects nor the researchers.