Legislating Privacy: Technology, Social Values, and Public Policy
Legislating Privacy: Technology, Social Values, and Public Policy
Temporality in Medical Work: Time also Matters
Computer Supported Cooperative Work
Of pill boxes and piano benches: "home-made" methods for managing medication
CSCW '06 Proceedings of the 2006 20th anniversary conference on Computer supported cooperative work
De-anonymizing Social Networks
SP '09 Proceedings of the 2009 30th IEEE Symposium on Security and Privacy
Privacy-preserving smart metering
Proceedings of the 10th annual ACM workshop on Privacy in the electronic society
The policy knot: re-integrating policy, practice and design in cscw studies of social computing
Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing
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The purpose of the study is to explore how chronically ill patients and their specialized care network have viewed their personal medical information privacy and how it has impacted their perspectives of sharing their records with their network of healthcare providers and secondary use organizations. Diabetes patients and specialized diabetes medical care providers in Eastern England were interviewed about their sharing of medical information and their privacy concerns to inform a descriptive qualitative and exploratory thematic analysis. From the interview data, we see that diabetes patients shift their perceived privacy concerns and needs throughout their lifetime due to persistence of health data, changes in health, technology advances, and experience with technology that affect one's consent decisions. From these findings, we begin to take a translational research approach in critically examining current privacy enhancing technologies for secondary use consent management and motivate the further exploration of both temporally-sensitive privacy perspectives and new options in consent management that support shifting privacy concerns over one's lifetime.