The Decision-Making Journey of a Family Carer: Information and Social Needs in a Cultural Context

  • Authors:

  • Lemai Nguyen;Graeme Shanks;Frank Vetere;Steve Howard

  • Affiliations:

  • School of Information Systems, Deakin University, Victoria, Australia 3010, E-mail: lemai@deakin.edu.au;Department of Information Systems, The University of Melbourne, Victoria, Australia 3010;Department of Information Systems, The University of Melbourne, Victoria, Australia 3010;Department of Information Systems, The University of Melbourne, Victoria, Australia 3010

  • Venue:
  • Proceedings of the 2008 conference on Collaborative Decision Making: Perspectives and Challenges
  • Year:
  • 2008

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Abstract

While the important role of family as carer has been increasingly recognised in healthcare service provision, particularly for patients with acute or chronic illnesses, the carer's information and social needs have not been well understood and adequately supported. In order to provide continuous and home-based care for the patient, and to make informed decisions about the care, a family carer needs sufficient access to medical information in general, the patient's health information specifically, and supportive care services. Two key challenges are the carer's lack of medical knowledge and the many carers with non-English speaking and different cultural backgrounds. The informational and social needs of family carers are not yet well understood. This paper analyses the web-log of a husband-carer who provided support for his wife, who at the time of care was a lung cancer patient. It examines the decision-making journey of the carer and identifies the key issues faced in terms of informational and social practices surrounding care provision.