Participatory design with individuals who have amnesia
PDC 04 Proceedings of the eighth conference on Participatory design: Artful integration: interweaving media, materials and practices - Volume 1
Assets '04 Proceedings of the 6th international ACM SIGACCESS conference on Computers and accessibility
Participatory design of an orientation aid for amnesics
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Shared landmarks in complex coordination environments
CHI '05 Extended Abstracts on Human Factors in Computing Systems
"LINC-ing" the family: the participatory design of an inkable family calendar
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Shared family calendars: Promoting symmetry and accessibility
ACM Transactions on Computer-Human Interaction (TOCHI)
Socio-technical environments supporting distributed cognition for persons with cognitive disabilities
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Memory aids as collaboration technology
Memory aids as collaboration technology
Patient-centered design: interface personalization for individuals with brain injury
UAHCI'11 Proceedings of the 6th international conference on Universal access in human-computer interaction: users diversity - Volume Part II
weRemember: letting ad patients to enjoy their home and their families
CHI '12 Extended Abstracts on Human Factors in Computing Systems
International Journal of Human-Computer Studies
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The loss of memory can have a profound and disabling effect on individuals. People who acquire memory impairments are often unable to live independent lives because they cannot remember what they need to do. In many cases, they rely on family members who live with them to accomplish everyday activities, such as coordinating a doctor's appointment. To design technology for persons with amnesia and their families, we involved end users in the participatory design of a collaborative memory aid called Family-Link. We evaluated Family-Link by comparing it to a commercially available calendar application. We found that participants shared significantly more events when using Family-Link. Qualitative evidence also suggests that Family-Link increased participants' awareness of family members' schedules, enabled caregivers to track the person with amnesia leading to a greater a sense of security and reduced stress, and reduced the amount of caregiver coordination effort. The paper concludes with design implications.