Understanding the challenges and opportunities for richer descriptions of stereotypical behaviors of children with asd: a concept exploration and validation

Authors:
Fnu Nazneen;Fatima A. Boujarwah;Shone Sadler;Amha Mogus;Gregory D. Abowd;Rosa I. Arriaga
Affiliations:
Georgia Institute of Technology, Atlanta, GA, USA;Georgia Institute of Technology, Atlanta, GA, USA;Georgia Institute of Technology, Atlanta, GA, USA;Georgia Institute of Technology, Atlanta, GA, USA;Georgia Institute of Technology, Atlanta, GA, USA;Georgia Institute of Technology, Atlanta, GA, USA
Venue:
Proceedings of the 12th international ACM SIGACCESS conference on Computers and accessibility
Year:
2010

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Abstract

Individuals with Autism Spectrum Disorder (ASD) often engage in stereotypical behaviors. In some individuals these behaviors occur with very high frequency and can be disruptive and at times self-injurious. We propose a system that can tacitly collect contextual data related to the individual's physiological state and their external environment, and map it to occurrences of stereotypies. A user study was conducted with children with ASD, parents, and caregivers to explore and validate this concept. A prototype of the system, developed through participatory design, was used in the study as a probe to elicit the information needs of these stakeholders, and provide a better understanding of the nuances involved in supporting those needs. Here we present the findings of this study, and four design recommendations; promoting ecological integration, addressing privacy concerns, supporting inference, and enabling customization.