Communications of the ACM
Layers of Silence, Arenas of Voice: The Ecology ofVisible and Invisible Work
Computer Supported Cooperative Work - Special issue: a web on the wind: the structure of invisible work
Digital family portraits: supporting peace of mind for extended family members
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
The Mobile Connection: The Cell Phone's Impact on Society
The Mobile Connection: The Cell Phone's Impact on Society
CHI '04 Extended Abstracts on Human Factors in Computing Systems
Technology for Care Networks of Elders
IEEE Pervasive Computing
Technology applied to address difficulties of Alzheimer patients and their partners
Dutch HCI '04 Proceedings of the conference on Dutch directions in HCI
Communications of the ACM - The Blogosphere
Personal health information management
Communications of the ACM - Personal information management
Understanding mobile phone requirements for young adults with cognitive disabilities
Proceedings of the 9th international ACM SIGACCESS conference on Computers and accessibility
MAHI: investigation of social scaffolding for reflective thinking in diabetes management
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
The portal monitor: a privacy-enhanced event-driven system for elder care
Proceedings of the 4th International Conference on Persuasive Technology
Proceedings of the ACM 2011 conference on Computer supported cooperative work
Robotic wheelchair moving with caregiver collaboratively depending on circumstances
CHI '11 Extended Abstracts on Human Factors in Computing Systems
Journal of Medical Systems
Tackling dilemmas in supporting 'the whole person' in online patient communities
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
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Health and wellness have drawn significant attention in the HCI and CSCW communities. Many prior studies have focused on designing technologies that are patient-centric, allowing caregivers to take better care of patients. Less has been done in understanding and minimizing the burden of caregiving in caregivers' own lives. We conducted a qualitative interview study to understand their experiences in caregiving. The findings reveal a great magnitude of challenges in the caregivers' day-to-day lives, ranging from the physical and social, to the personal and emotional. Caregivers have to constantly balance their personal lives with work, family, and their caregiver roles, which can be overwhelmingly stressful. We discuss how caregivers attempt maintaining this balance through two concepts: first, giving-impact, and second, visibility-invisibility. Our study's findings call for system design that focuses not only on patients but also caregivers, addressing the burdens that often impair their health and wellness.