Communications of the ACM
Layers of Silence, Arenas of Voice: The Ecology ofVisible and Invisible Work
Computer Supported Cooperative Work - Special issue: a web on the wind: the structure of invisible work
The Computer-Based Patient Record: An Essential Technology for Health Care
The Computer-Based Patient Record: An Essential Technology for Health Care
Making a Case in Medical Work: Implications forthe Electronic Medical Record
Computer Supported Cooperative Work
Scandinavian Journal of Information Systems
ICT and Integrated Care: Some Dilemmas of Standardising Inter-Organisational Communication
Computer Supported Cooperative Work
Seamless Integration: Standardisation across Multiple Local Settings
Computer Supported Cooperative Work
Documents in Place: Demarcating Places for Collaboration in Healthcare Settings
Computer Supported Cooperative Work
Place and Technology in the Home
Computer Supported Cooperative Work
Cancer navigation: opportunities and challenges for facilitating the breast cancer journey
Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing
Spokespersons, negotiators and actuators. The invisible workers of pervasive healthcare
Proceedings of the 7th International Conference on Pervasive Computing Technologies for Healthcare
A Review of 25 Years of CSCW Research in Healthcare: Contributions, Challenges and Future Agendas
Computer Supported Cooperative Work
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For many years the introduction of Electronic Health Records (EHRs) in medical practice has been considered the best way to provide efficient document sharing among different organizational settings. The actual results of these technologies, though, do not seem to have matched expectations. The issue of document sharing has been lately readdressed by proposing the creation of patient-controlled information and communication technologies, Personal Health Records (PHRs), providing laypeople the tools to access, manage and share their health information electronically by connecting to the existing EHRs and other institutional information systems. In this scenario, patients are called to play a major role in coordinating healthcare professionals by providing them the information they need. From a CSCW perspective the PHR offers an interesting case to reflect on cooperative work that requires new infrastructures that intersect organizational settings and extend into domestic environments. So far though, there has not been enough research to shed light on the self-care activities carried out in the households and how these integrate with the organizational practices of doctors and institutions. Our analyses show that health record keeping is an articulation work necessary for meetings with doctors to proceed smoothly. To do so, people integrate the information contained in medical documents by working on them with annotations, underlinings and integrations. Moreover, we show that health record keeping is a spatialized activity that is inextricably interwoven with the everyday routine and objects. Finally, we provide a tentative classification of three different strategies laypeople use to sort out health records: minimum effort, adaptive, networking.