Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
The Power of Identity
Persuasive Technology: Using Computers to Change What We Think and Do
Persuasive Technology: Using Computers to Change What We Think and Do
Trust and mistrust of online health sites
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
OpinionFinder: a system for subjectivity analysis
HLT-Demo '05 Proceedings of HLT/EMNLP on Interactive Demonstrations
Steps toward a typology for health informatics
Proceedings of the 2008 ACM conference on Computer supported cooperative work
Understanding together: sensemaking in collaborative information seeking
Proceedings of the 2010 ACM conference on Computer supported cooperative work
Social use of computer-mediated communication by adults on the autism spectrum
Proceedings of the 2010 ACM conference on Computer supported cooperative work
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
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People with chronic health problems use online resources to understand and manage their condition, but many such resources can present competing and confusing viewpoints. We surveyed and interviewed with people experiencing prolonged symptoms after a Lyme disease diagnosis. We explore how competing viewpoints in online content affect participants' understanding of their disease. Our results illustrate how chronically ill people search for information and support, and work to help others over time. Participant identity and beliefs about their illness evolved, and this led many to take on new roles, creating content and advising others who were sick. What we learned about online content creation suggests a need for designs that support this journey and engage with complex issues surrounding online health resources.