Digital family portraits: supporting peace of mind for extended family members
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Casablanca: designing social communication devices for the home
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Keeping in touch with the family: home and away with the ASTRA awareness system
CHI '04 Extended Abstracts on Human Factors in Computing Systems
Personal health information management
Communications of the ACM - Personal information management
Interpersonal awareness in the domestic realm
OZCHI '06 Proceedings of the 18th Australia conference on Computer-Human Interaction: Design: Activities, Artefacts and Environments
Connecting the family with awareness systems
Personal and Ubiquitous Computing - Memory and Sharing of Experiences
SPARCS: exploring sharing suggestions to enhance family connectedness
Proceedings of the 2008 ACM conference on Computer supported cooperative work
Exploring communication and sharing between extended families
International Journal of Human-Computer Studies
Busy families' awareness needs
International Journal of Human-Computer Studies
Locating patient expertise in everyday life
Proceedings of the ACM 2009 international conference on Supporting group work
Understanding family communication across time zones
Proceedings of the 2010 ACM conference on Computer supported cooperative work
Catalyzing social support for breast cancer patients
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Blowing in the wind: unanchored patient information work during cancer care
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Sharing conversation and sharing life: video conferencing in the home
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
The family window: the design and evaluation of a domestic media space
Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
Design of an instrument for the evaluation of communication technologies with children
Proceedings of the 9th International Conference on Interaction Design and Children
IEEE Transactions on Information Technology in Biomedicine - Special section on affective and pervasive computing for healthcare
Barriers to the adoption and use of personal health record systems
Proceedings of the 2011 iConference
Proceedings of the ACM 2011 conference on Computer supported cooperative work
Impression management work: how seniors with chronic pain address disruptions in their interactions
Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work
Towards a questionnaire for measuring affective benefits and costs of communication technologies
Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing
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When a patient has a chronic illness, such as heart disease or cancer, it can be challenging for distributed family members to stay aware of the patient's health status. A variety of technologies are available to support health information sharing (e.g., phone, video chat, social media), yet we still do not have a detailed understanding of which technologies are preferred and what challenges people still face when sharing information with them. To explore this, we conducted a mixed-method study-involving a survey and in-depth interviews--with people about their health information sharing routines and preferences for different technologies. Regardless of physical distance between distributed family members, synchronous methods of communication afforded the opportunity to provide affective support while asynchronous methods of communication were deemed to be the least intrusive. With family members adopting certain roles during the treatment of chronic illnesses, our findings suggest the need to design tools that mediate sharing health information across distance and age gaps, with consideration to respecting patient privacy while sharing health information.