Participatory design of an autism community network to enhance community participation, health, and well-being

Authors:
John M. Carroll;Jamika D. Burge;Scott Robertson;Mary Beth Rosson
Affiliations:
The Pennsylvania State University, University Park, PA, USA;BAE Systems, Inc, Arlington, VA, USA;The Pennsylvania State University, University Park, PA, USA;The Pennsylvania State University, University Park, PA, USA
Venue:
Proceedings of the 1st ACM International Health Informatics Symposium
Year:
2010

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Abstract

We present a socio-technical design that illustrates how a community network health intervention can mobilize human resources across social boundaries, and enhance health and well-being for people on both sides of the boundary. We specifically address how to reduce the barriers to social engagement experienced by autistic individuals who want more supportive life opportunities. We focus on the social milieu of an American college town, on traditional town-gown boundaries, and on possibilities for integrating social resources within this context. Our design adopts community networking to not only connect autistic persons living within an existing social milieu (university undergraduates; local autistic children and their families), but also to integrate individuals across milieus. Our key design idea is that facilitating cross-milieu interactions can initiate and sustain a virtuous cycle of being helped by helping others.